Coping With MS

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MS is an unpredictable chronic illness for which there are few definitive answers. For some individuals who may have been living with MS symptoms for some time before the diagnosis, hearing they have this may prove to be a relief. Others may feel vindicated, and for most a feeling of uncertainty. Many people will be flooded with emotions such as shock, anger, sadness and fear.

These are all normal reactions. Learning to live with a chronic condition takes time. Time to learn about your condition, and perhaps time to learn ways to adapt things. Learning to find a balance in your life and pace yourself is important. There are many people and support groups available. Check with your local MS Society chapter and other community resources. Take the time to find out what is out there. Listen to your body. You will have good days and bad days. Knowing what works for you and how you can manage your symptoms will take time.

Educate yourself about MS. Some people will want a lot of specific information at the outset while others will process information in more gradual increments. There is no “one size fits all” approach. The right amount is that with which you feel comfortable. There are many sources of information; your family physician, your neurologist, MS clinic and the MS Society. Be aware and be selective.

Adjusting to MS

As with other chronic illnesses, a person may go through different stages or periods of adjustments following the diagnosis. It is important to remember that you need to respect your unique ways of moving through this process.

Coping with MS Stages

The following is based on an Exploratory Study by the National Multiple Sclerosis Society of America.

Denial

  • Concealing symptoms
  • It’s not true
  • Refusing help

Resistance

  • Searching for a cure
  • Reluctant to accept help
  • Initial recognition of change in life orientation

Affirmation

  • Publicly explaining about MS
  • Learning to accept help as needed

Integration

  • Living with it
  • It’s there, but don’t think about it much
  • Spending time and energy on other matters

Some things to remember

  • Set realistic goals
  • Choose one thing to work on at a time
  • Stay positive

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